I'm a writer and journalist. For more than 25 years I've been reporting
about alternative medicine in a variety of media - since 1994 on the
Internet. Nine years ago the Congress representing the people called on
the federal government to establish the Office of Alternative Medicine
(OAM). I was one of about 100 people chosen to serve on the OAM's first
program advisory panels, including a panel about information collection
and dissemination and alternative medicine databases.
Those were the days before the Internet and we couldn't imagine then
what the Net would have to offer. Net users have gone from 0 in 1993 to
over 300 million in 2000. In 1992, we also could not foresee the growth in
the OAM (now NCCAM - National Center for Complementary Alternative
Medicine) budget - or that nine years later, relatively little information
would be disseminated to the public which is ironic considering the CAM
(Complementary Alternative Medicine) information explosion.
I'm not going to criticize the OAM or NCCAM or this commission today.
The challenges are substantial, everyone means well, and a lot of advances
are being made.
Instead, I'd like to make a few comments and suggestions based on my
substantial experience with the Net. I use the Internet as a journalist -
to do most of my research, to communicate with people all over the world,
and to publish - and also as a medical consumer. According to the Pew
Research Center study Nov. 26, 2000 (The Online Health Care Revolution:
How the Web helps Americans take better care of themselves), Fifty-two
million adult Americans - 55 percent of the Internet-user population -
have turned to Internet sources to seek health information.
Information is power; it's currency. People inside the Beltway have
long known this. Nowadays, consumers are becoming more empowered - by
information. Growing consumer interest and choice and the free marketplace
have come together to drive the growth of Complementary Alternative
Medicine and make innovative health options possible and more accessible.
Information online is exploding - from proponents and opponents of CAM
therapies, mainstream and CAM medical journals, news stories, newsgroups,
personal Web sites, disease- and therapy-based health sites, and portals
like WebMD and Medscape.
Today, more people are learning that critical issues including health
care are increasingly outside the conventional political arena. Change is
not coming from the top down. Instead, individual consumers are becoming
better informed and educated and are taking more personal responsibility
for their own health. Demands for information, choice, and autonomy are
growing. (Too often, in my experience, new government programs just get in
the way.)
Recommendations
More resources should be given immediately to expanding the
government's Web sites devoted to CAM. We don't have to wait for the
data and the studies to come in years from now. And data and studies are
rarely definitive anyway.
The sites can provide abundant resources without making specific
recommendations. They could help to organize and link to the plethora of
information that already exists - not only pro-alt med sources, but
skeptical ones, as well. Let the American people have access to all of
the information and then they can better decide what's best for them.
The government can play a supportive role in helping to overcome the
limitations with health info on the Web. On Jan. 15, 2001 a report by
the Detwiler Group of Fort Wayne, Indiana "detail[ed] shortcomings of
e-health sites." According to the report, "While Internet sites provide
a convenient source of healthcare information, not all of their content
is timely or accessible."
As the late Robert Mendelsohn, MD often said, modern medicine has
become like a medieval priesthood, inaccessible and largely unaccountable.
The Internet is quickly helping to change, and to democratize, that
status quo.
To paraphrase Patrick Henry, "Give me Internet health information, or
give me death!"
In summary: It would be helpful if the government's CAM programs
could better implement the intention of Congress a decade ago to
disseminate CAM information to the public by moving more proactively and
aggressively into a leadership position with alt med online.
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