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I'm a writer and journalist. For more than 25 years I've been reporting 
      about alternative medicine in a variety of media - since 1994 on the 
      Internet. Nine years ago the Congress representing the people called on 
      the federal government to establish the Office of Alternative Medicine 
      (OAM). I was one of about 100 people chosen to serve on the OAM's first 
      program advisory panels, including a panel about information collection 
      and dissemination and alternative medicine databases. 
      
 Those were the days before the Internet and we couldn't imagine then 
      what the Net would have to offer. Net users have gone from 0 in 1993 to 
      over 300 million in 2000. In 1992, we also could not foresee the growth in 
      the OAM (now NCCAM - National Center for Complementary Alternative 
      Medicine) budget - or that nine years later, relatively little information 
      would be disseminated to the public which is ironic considering the CAM 
      (Complementary Alternative Medicine) information explosion.
 
 I'm not going to criticize the OAM or NCCAM or this commission today. 
      The challenges are substantial, everyone means well, and a lot of advances 
      are being made.
 
 Instead, I'd like to make a few comments and suggestions based on my 
      substantial experience with the Net. I use the Internet as a journalist - 
      to do most of my research, to communicate with people all over the world, 
      and to publish - and also as a medical consumer. According to the Pew 
      Research Center study Nov. 26, 2000 (The Online Health Care Revolution: 
      How the Web helps Americans take better care of themselves), Fifty-two 
      million adult Americans - 55 percent of the Internet-user population - 
      have turned to Internet sources to seek health information.
 
 Information is power; it's currency. People inside the Beltway have 
      long known this. Nowadays, consumers are becoming more empowered - by 
      information. Growing consumer interest and choice and the free marketplace 
      have come together to drive the growth of Complementary Alternative 
      Medicine and make innovative health options possible and more accessible. 
      Information online is exploding - from proponents and opponents of CAM 
      therapies, mainstream and CAM medical journals, news stories, newsgroups, 
      personal Web sites, disease- and therapy-based health sites, and portals 
      like WebMD and Medscape.
 
 Today, more people are learning that critical issues including health 
      care are increasingly outside the conventional political arena. Change is 
      not coming from the top down. Instead, individual consumers are becoming 
      better informed and educated and are taking more personal responsibility 
      for their own health. Demands for information, choice, and autonomy are 
      growing. (Too often, in my experience, new government programs just get in 
      the way.)
 
 Recommendations
 
        More resources should be given immediately to expanding the 
        government's Web sites devoted to CAM. We don't have to wait for the 
        data and the studies to come in years from now. And data and studies are 
        rarely definitive anyway. 
        
 
The sites can provide abundant resources without making specific 
        recommendations. They could help to organize and link to the plethora of 
        information that already exists - not only pro-alt med sources, but 
        skeptical ones, as well. Let the American people have access to all of 
        the information and then they can better decide what's best for them. 
        
 
The government can play a supportive role in helping to overcome the 
        limitations with health info on the Web. On Jan. 15, 2001 a report by 
        the Detwiler Group of Fort Wayne, Indiana "detail[ed] shortcomings of 
        e-health sites." According to the report, "While Internet sites provide 
        a convenient source of healthcare information, not all of their content 
        is timely or accessible."  As the late Robert Mendelsohn, MD often said, modern medicine has 
      become like a medieval priesthood, inaccessible and largely unaccountable. 
      The Internet is quickly helping to change, and to democratize, that 
      status quo.
 
 To paraphrase Patrick Henry, "Give me Internet health information, or 
      give me death!"
 
 In summary: It would be helpful if the government's CAM programs 
      could better implement the intention of Congress a decade ago to 
      disseminate CAM information to the public by moving more proactively and 
      aggressively into a leadership position with alt med online.
 
   
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